The Stigma of Male Breast Cancer - Insights From a Survivor
Breast cancer in men is rare, but it’s a reality that deserves more awareness. As male breast cancer accounts for less than 1% of all breast cancer cases in the United States, many people are still unfamiliar with the condition. To help increase awareness and understanding, we spoke with Bret Miller, a male breast cancer survivor and advocate, who has made it his mission to raise awareness through his platform, Male Breast Cancer Happens. In this Q&A, Bret discusses the stigma men face when it comes to breast cancer, and offers practical advice for men on how to prioritize breast health.
Learn more: Understanding and Addressing Male Breast Cancer
The male perspective: real answers from a survivor
What has your experience been with the social stigma surrounding male breast cancer?
That men don't get breast cancer. It's only a women's disease, this is because there isn't awareness for men. There aren't commercials, ads or any other media outlets that are saying men can get breast cancer. So men aren't aware.
What are the best ways to raise awareness for breast cancer in men?
Just speak out. Since I am a male with breast cancer any chance I get to tell my story I do. Just so I can help one guy become aware of breast cancer.
I hope I see the day where during a large sporting event a commercial comes on showing a male with breast cancer saying we can get it too. So do your monthly self breast exams.
How important is it for male patients to seek a second opinion, even when they’re told everything is fine?
I believe it is very important. I've met several doctors that do not know men can get breast cancer. Not only is a second opinion important for diagnosis, it is important for treatment.
How can men be more vigilant in recognizing symptoms? How can men effectively perform self-checks?
Men need to do monthly self breast exams just as women do. If there is a lump, dimpling of the skin or a rash anywhere in your breast, collar bone to armpit to just below your nipple get to a doctor. Any discharge from the nipples is a huge red flag. Go check out breastselfexams.org.
What questions should every male breast cancer patient ask their healthcare providers?
Can you perform a breast scan during my physical?
Misdiagnosis can happen. What steps do you recommend to ensure men are receiving accurate information and care from their doctors?
Be your own best advocate, know your body and any changes. Speak up to your Doctor. Do some research but don't go the Google way and believe everything you read. But just ask questions to your doctor.
What are some challenges that (only) male breast cancer patients face during their journey?
Everything we have to do and go through is from a woman's perspective. Some have changed and offer gender neutral gowns and exams but most are done in a women's clinic. Everything is pink, just understand that this is the case. I was able to accept it but some aren't. It sucks but it's just how care is given. Ask the doctor or clinic for something not pink. I'm sure they can provide.
What role did support from friends and family play in your cancer journey? What advice would you give to others about building a strong support network during their journey?
Family and friends are a huge support system. I know if I didn't have them around it would have been very difficult to get through everything. Have a caregiver if you can go to appointments with you. It is a lot of information and you need to take notes. Have some humor during the journey, it helps everyone around you be more at ease and get through. Don't be angry at someone for trying to help.