Hi, I’m Emily from the UK. This is my story of how I managed my Stage 1 breast cancer.
I felt a lump in my breast that hadn't been there before. I thought it might be a cyst as I'd had cysts before. I went to my GP who agreed it felt like a cyst, but she referred me to the breast clinic 'just to be sure'. I saw a consultant two weeks later. He agreed it felt like a cyst, and sent me for a mammogram.
The mammogram was screened by a different consultant, who told me it showed a cyst but nothing else. He then performed an ultrasound which showed a small 7mm mass behind the cyst. He performed a biopsy and told me it was probably nothing to worry about. I was sent home to wait for a follow-up appointment to get the biopsy results.
Three days before the results appointment - on a bank holiday weekend - I received a letter telling me I had been booked in for a further 'pre-operative' procedure. And that is how I found out that my biopsy was not 'all clear'. I didn't know what the procedure was, and I couldn't phone the breast clinic as it was a weekend. I looked it up on the internet, and the information that I found suggested that I may have a fast-growing cancer that would require pre-operative chemotherapy.
I was devastated and bewildered that this information had arrived because an appointment letter had been sent out before my results appointment. I had to wait three days to confirm my fears.
At the results appointment, I was told I had a small, early but invasive ductal tumour. I would need surgery to remove the tumour and surrounding tissue, plus some lymph nodes. Then I would have a course of radiotherapy and maybe chemotherapy as well depending on the pathology results after the surgery.
I didn't have the kind of fast-growing cancer I had read about, but I did have breast cancer.
I felt frightened, nervous and overwhelmed. I felt that it was unfair, and I also felt empty, powerless and angry.
I’ve also lost my grandmother, two uncles and childhood best friend.
I cut down completely on alcohol, exercised more and kept a healthier diet.
I opted for a
- breast-conserving lumpectomy
- lymphadenectomy
along with
I made my choice based on my own research, and my doctor’s recommendation. After my decision, I felt a little anxious and scared.
Currently, I’m in remission, and only on hormone therapy.
I faced issues with fatigue, menopause symptoms, as well as skin soreness and tenderness.
I focused more on lifestyle changes to help manage these side effects. For example, my fatigue meant that I was able to do less and needed to rest more. I didn’t face difficulties financially.
I made permanent changes to my lifestyle, improving my nutrition, eating better all the time, exercising more and continued to cut out alcohol completely.
Everything I did was about self-care and coping. I had no capacity for social activities, I reduced my working hours, my life became smaller and single-minded.
For my family, I have a holiday planned, and tickets for two concerts all this year. For myself, I've set some work goals. I have regular massages, and I’m planning some home improvements
Initially I was motivated to reach my 30th wedding anniversary. That was last September, in 2023. Now I am focusing on year by year, just to enjoy life and appreciate the people I love.
I am still fearful that my life will be shortened by cancer, and I am terrified of recurrence. The fear is present and ongoing. I don't know how to overcome it.
Now I feel more neutral, but also resentful. I was angry about some of my experiences during treatment.
To those on their own cancer journey, I’d like to say: “Every moment is new. The tiniest things can be joyful. I remember, at the depths of pain and fatigue, finding joy in seeing birds fly past my window, in the purr of my cat, the taste of a strawberry.
If cancer has gifted me anything it is the ability to find pleasure in the tiniest moments.”
This patient's story is published and shared with their full consent. Any personal data that can be used to identify the patient has been omitted.
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