

In February 2021, after suffering from urination issues for months, I was diagnosed with stage 4 prostate cancer. Since then, I’ve undergone a radical prostatectomy but I'm currently waiting for my PSA to rise to a certain level before commencing more treatment.

The first symptoms I experienced had to do with the urgency and frequency of urination. I was urinating often, especially at night, and had trouble emptying the bladder completely. I thought it was an age-related issue, so I only sought medical attention after about 6 months to a year later. That’s how I was diagnosed with cancer, specifically a prostate adenocarcinoma. Afterwards, I got a second opinion because I wanted to confirm my diagnosis.

I remember feeling angry, fearful and surprised when I heard the news. After checking I found no history of prostate cancer in my side of the family. The confirmed diagnosis was quite a shock.

In terms of treatment, I first had an MRI, followed by a biopsy, then a PSMA PET scan, then a RARP. It was my personal preference for surgery over radiation therapy. Deciding on this treatment plan, I was optimistic because I thought 1 surgery would fix my cancer issue. I wish I’d known that this disease is much harder to treat than I expected. My practical advice to others with cancer would be to research every aspect of your condition and possible treatment options.
Follow up tests showed high PSA. More investigation and a FDG PET scan discovered cancer in the right side pelvic lymph nodes. So, I had a second surgery to remove them. Further PSA tests reveal a slow increase in PSA levels. I expect I'll need more treatment soon. My treatment costs are covered by the public health system available in my country.

My only ongoing side effect is ED. I have not regained any erectile function since my surgeries.

I did not exercise at all prior to treatment. Now I go to the gym 3 times a week.

After I was diagnosed with cancer, my social life and relationships with loved ones were affected. I know my family is concerned for my future.
But struggles with my self-esteem/self-image have had the biggest impact on me. My ED makes me feel less of a man. My self esteem has taken a hard hit and hasn’t recovered.

I’m still angry, fearful and sad. After having 2 surgeries, I thought I would be in a better position by now, but I'm not.

Try not to get overwhelmed by your situation. Try not to stress over things you cannot change. Do your research and be as well informed as you can be about your condition and the possible treatment options. Don't be afraid to seek a second or even a third opinion if you're not happy with a decision. Once you have all the relevant information, make YOUR decision regarding the best possible treatment option for you and your situation, and stick with it.
This patient's story is published and shared with their full consent. Any personal data that can be used to identify the patient has been omitted.
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